The purpose of this grant activity is to establish a cooperative agreement to address issues regarding newborn screening and follow-up of infants with Sickle Cell disease and trait babies. This initiative will provide models, best practices, and dissemination strategies for ensuring optimal follow-up and management of babies identified with Sickle Cell disease and/or traits.
This cooperative agreement is to fund a national Sickle Cell disease organization that will partner with families, community-based Sickle Cell disease organizations, health care professionals, State agencies including State Title V and newborn screening programs, and MCHB and its National Newborn Screening and Genetics Resource Center. It will serve as a national Sickle Cell disease coordinating center to deal with issues related to educational materials, a common data base, evaluation, counselor certification, partnership building and information exchange. It will also support implementation of the community-based Sickle Cell disease projects funded by this initiative and provide a community forum between MCHB and the Sickle Cell disease community to identify and prioritize issues important to the Sickle Cell disease community.
Who can apply:
Eligible functional categories:
Maternal and Child Health Federal Consolidated Programs
If you have problems accessing the full announcement, please contact:
Department of Health and Human Services, Health Resources and Services Administration, HRSA Grants Application Center, 901 Russell Avenue Suite 450, Gaithersburg, MD, 20879